AD, Patient & Community Liaison

Job Description: • Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers • Empower patients and caregivers with knowledge and tools to navigate their SMA journey • Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s) • Provide resources and education on treatment expectations • Develop relationships with local advocacy chapter leads • Attend events throughout the country by hosting the Novartis table, meeting with SMA families • Provide insights/learnings to Advocacy, Marketing, NPS and Market Access teams • Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content • Document interactions and feedback from patients and caregivers to improve the education program • Contribute and participate in internal and business reviews • Maintain working knowledge of required platforms and processes • Ensure compliance with all NVS policies and guidance Requirements: • Bachelor’s degree in healthcare (i.e. social work, genetic counseling) education, or a related field • Minimum of 3-5 years of experience in patient education, pharmaceutical, or healthcare support roles • Experience in gene therapy and rare disease • Exceptional communication and interpersonal skills • Ability to present complex information in an empathetic, clear, and engaging manner • Experience delivering presentations in front of a live audience • Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries • Proficiency in using virtual tools for education (e.g., video conferencing, webinars) • Ability to think creatively and conceptually • Ability to lead, motivate, develop, and influence others • Strong teamwork and collaborative skills and mindset • Proven ability to work effectively in a matrixed environment • Ability to travel 70% of time, with weekend travel required • Bilingual Spanish speaking preferred Benefits: • Health, life and disability benefits • 401(k) with company contribution and match • Generous time off package including vacation, personal days, holidays and other leaves Apply tot his job